Contact Us

5320 West Michaels Drive
Appleton, WI 54913

Telephone (920) 882-0818

Board Members (Click on name to send a message)

David Bond_WebDavid Bond – President
I have been working with brain tumor patients and their families since May of 2000 as a neurosurgical nurse practitioner allowing me to get to know some phenomenal people as I help them with their journey of brain tumor treatment.  Seeing how stressful this diagnosis is, I founded the brain tumor support group in September of 2001.  We grew quickly and are now one of the biggest support groups in the country.  We added financial assistance to our list of services in 2003.  I personally handle all of the financial assistance and bill paying and thoroughly enjoy telling patients we have gotten them out of debt!
I am especially proud of the other volunteers that have built this group with me and make it the family it is today!

Amy BaetenAmy Budd – Vice President
Amy E. Budd joined the FVBTC Board in 2011 as Vice President. Amy is a brain tumor patient and caregiver advocate.  Mrs. Budd was appointed to the Board in 2011 after her husband Jeremiah Baeten’s death. She has been an active member since 2008 working most passionately on further developing the Youth Brain Tumor Support Services. Amy has a Bachelors Degree in Business with a focus in Marketing. She works for Schneider National as the Market Research and Strategic Programs Manager. She has experience working with the executive team delivering market assessments, strategic plans, and new venture options to the Board of Directors. In her free time, Amy enjoys spending time with family & friends and helping raise three children who lost their mother from brain cancer. She leads an active lifestyle and participates in endurance sports. Amy’s compassion and interest in helping brain cancer patients and families combined with her professional experience bring new ideas and additional management to the organization.

Julie WurlJulie Wurl – Secretary
Julie Wurl joined the Fox Valley Brain Tumor Coalition Board in 2009.  She currently works at NeuroSpine as their keeper of the electronic medical record and assisting those with brain tumors.  She has worked a variety of roles throughout her career including the Cancer Center located at Appleton Medical Center.  She has assisted in the planning of the Journey of Hope since the first walk.  She is currently pursuing her bachelors in Information Technology through an online program.  In her free time, she enjoys reading and listening to music.  Her family includes 3 cats, Gabby, Maddy and Oscar who keep her well entertained.

Penny BoehlinPenny Boehlen
My husband, Bob, and I attended the very first support group meeting in September of 2001.  He died within 11 months of being diagnosed with a GBM.  The support group always has a caring, family atmosphere so I continued my involvement and became a Board member upon the inception of the Fox Valley Brain Tumor Coalition.  I’m pleased with the support that we offer – financial, educational & emotional.

Brian BurnsBrian Burns – Website Administrator
I joined the support group with my brother Dean who was diagnosed with a GBM brain tumor in 2005, that’s Dean to the right of me in the photo, my daughter to the left.  After losing Dean in 2006, I wanted to continue to support the group and started the Synapse monthly newsletter.  The last Synapse was published June 2012 when I created this website for the coalition, which I continue to maintain and improve.  I am honored to serve on the board and find it very rewarding to be a part of the FVBTC community.